Every year we hold a fundraiser for Dravet Syndrome research and family assistance called Make Noise.
Barry speaks to The Current on CBC Radio from Colorado where Kate is currently medicating with Charlotte's Web
Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Initial seizures are most often prolonged events and in the second year of life other seizure types begin to emerge.
Help Kate and other pediatric patients in Canada access the medicine they need. CBD has had unprecedented results in the United States for pediatric seizure disorders that don't respond to standard anti-epileptic medications